Advocacy Day 2008
This a poem about Advocacy Day
when we arose in the morn and hopped on the bus
bleary-eyed at 5:00 a.m.,
for at least the most of us.
You’d think you’d have to be insane
to ride four hours at the break of day
instead of nudging your common-law partner
for one more roll in the hay.
Yet we had a mission to accomplish
tasks to do, people to meet
and, hopefully, with our stack of evidence
knock those peeps in Albany offa their feet.
Our missives were color-coded (lavender, goldenrod, azure)
our objective was tried and true,
to have understanding, support, ACTION
and not to stand long in a queue.
Good news! The elected-officials were receptive
impressed with our organizational skills
I was there a smiling representation
of a horrible disease that kills.
I got some sympathy hugs from 2 reps
Who make all the laws
I bet they were happy to hear me say
My canca’s mine and not yaws.
I say that in jest, of course
‘cause I’ll never be happy to have it.
My mets are chewing up my body
like a voracious, underfed rabbit.
However, we got their attention!
We shared our info and talked
everyone told their story and our representatives listened
and at the marble halls we gawked.
Even though I got lost. Once.
I’m writing all this under my yellow fleece blankie
That Gail gave me at Pluta
While around me my colleagues bustle about
Having their wine and fooda.
I’ll surely make the next trip
no matter when it is
even if I’m tied to an IV pole
or tired out like this.
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